Checklist for Working with the KID

The Kids' Inpatient Database (KID) is part of a family of databases and software tools developed for the Healthcare Cost and Utilization Project (HCUP).

The number of studies using the KID has increased rapidly in recent years. HCUP databases, including the KID, are consolidated sources of information that can be used for many types of research. Researchers, peer manuscript reviewers, and journal editors need to understand the KID database design, its strengths and limitations, and how it has changed over time to ensure its appropriate use and to interpret study results. This document provides a checklist of key elements to consider and connects you to KID informational resources, organized into four sections:

HCUP Data Use Agreement for Nationwide Databases and Acknowledgements
Research Design
Data Analysis
Transition from International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM) to the Tenth Revision, Clinical Modification/Procedure Coding System (ICD-10-CM/PCS).

The KID Database Documentation page is the main resource for all information regarding the KID, including the Introduction to the HCUP Kids' Inpatient Database (KID), which is recommended as a starting resource for new users.

KID Data Use and Acknowledgments

	Checklist Item	Description	Checklist Resource
⬜	Obtain and adhere to the HCUP Nationwide Database Data Use Agreement (DUA).^a	The HCUP DUA governs the disclosure and use of the data, including affirmations to protect individuals, establishments, and the database itself.	For general information, review the Responsibilities of the Data Purchaser and the HCUP Nationwide Database Data Use Agreement (DUA). To access the KID, you must complete the HCUP Data Use Agreement Training.
⬜	Verify privacy protections for individuals and hospitals.	Individuals cannot be identified directly or indirectly. Reporting cell sizes < 10 increases the risk of re-identification and is discouraged, as specified in the Data Use Agreement. At least two hospitals must contribute to each cell.	For general information, review the Requirements for Publishing with HCUP Data page on the HCUP User Support (HCUP-US) website.
⬜	Cite HCUP, the KID, and other HCUP tools.	HCUP, the KID, and other supporting tools must be correctly cited in the abstract and manuscript.	For more information, review the Suggested Citations for HCUP Databases and Tools page on HCUP-US.
⬜	Acknowledge HCUP Partners.	Participating HCUP Partners should be listed in the manuscript by name or acknowledged by a hyperlink to the HCUP-US website.	For more information, review the List of HCUP Data Partners for Reference in Publications page on HCUP-US.
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Research Design
⬜	Learn how to account for the KID sampling design.	The KID is sampled from the HCUP State Inpatient Databases (SID). Accounting for the sampling design is critical for accurate analyses.	For detailed information, review the Introduction to the KID on the KID Database Documentation page. To learn more about the KID sample design, view the Sample Design On-line Tutorial on the Tutorial Series page.
⬜	Only inpatient events are captured in the KID.	The unit of analysis in the KID is inpatient stays, not individual patients. Only conditions, procedures, and diagnostic tests occurring during a specific inpatient hospital encounter are captured in the KID. Records of events and diagnoses before or after the stay are not available.	For more information, review the Contents of the KID section of the Introduction to the KID on the KID Database Documentation page. For more information on conducting revisit analyses at the national level, review the Nationwide Readmissions Database (NRD). For State-level information, review the HCUP Supplemental Variables for Revisit Analyses.
⬜	Excluded Facilities	The KID includes community hospitals, but it excludes rehabilitation hospitals.	Additional information on hospital-level exclusions is included in the Introduction to the KID on the KID Database Documentation page.
⬜	No State-level analyses are performed.	The sampling design of the KID does not support State-level analyses. The SID must be used for State-level research.	For more information, review Why the KID Should Not Be Used to Make State-Level Estimates. To learn more about the SID, review the Overview of the State Inpatient Databases (SID) page on HCUP-US.
⬜	Facility-level analyses are limited.	The KID contains a systematic random sample of 10% of normal newborns born in the hospital and 80% of other newborns and pediatric cases from each sampled hospital. Therefore, researchers could estimate the number of discharges for each hospital as: sampled discharges / the sampling rate (.8 for cases other than normal newborns). However, because the KID includes less than 100% of pediatric discharges for each hospital, researchers will not be able to calculate hospital-specific outcomes with certainty. Users should not attempt to identify individual facilities as specified in the Data Use Agreement.	For more information, review the "Sampling of Discharges" section of the Introduction to the KID on the KID Database Documentation page on HCUP-US.
⬜	No physician-level analyses are performed.	The KID does not include physician identifiers.	For more information, review the KID Description of Data Elements page on HCUP-US.
⬜	It is not possible to track patients in the KID.	The KID does not include patient identifiers.	For more information, review the Introduction to the KID on the KID Database Documentation page on HCUP-US.
⬜	Administrative (ICD) codes are appropriate for the outcomes of interest.	Administrative codes for the conditions or procedures of interest (ICD-9-CM and ICD-10-CM/PCS,) should be selected with care, especially over time, as codes and coding rules change annually.	For more information, review the Choosing Data Elements for Analysis section of the Introduction to the KID on the KID Database Documentation page on HCUP-US. Refer to the ICD-10-CM/PCS Resources page on HCUP-US under Data Innovations for a summary of key issues for researchers using HCUP and other administrative databases that include ICD-10-CM/PCS coding. To check for year-to-year variation in administrative codes, consult with a medical coding professional.
⬜	Account for year- based differences in data element availability in the KID.	The study design should account for differences in data element availability across data years. For example, the number of diagnosis codes present can vary by year.	For more information about data element availability in the KID, review the KID Description of Data Elements page on HCUP-US.
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Data Analysis
⬜	Use weights for national estimates.	To generate national estimates using the KID, use the discharge-level weight (DISCWT) to estimate discharges treated at community hospitals (excluding rehabilitation and LTAC facilities) in the United States. To generate national estimates using multiple years of the KID, you must apply weights using the variable TRENDWT (for data year 1997) and the variable DISCWT (for data years 2000 and later).	For general information on weights, review KID Trend Weights File. To learn how to apply KID weights, view the Producing National HCUP Estimates Online Tutorial and review HCUP Methods Series Report # 2007-02: Using the KIDS' Inpatient Database (KID) to Estimate Trends. To learn how to apply the trend weights for multi-year analyses, view the HCUP Multi-Year Analysis On-line Tutorial on the Tutorial Series page.
⬜	Account for the design of the KID when calculating standard errors.	Standard error calculations should take into account the stratification (data element KID_STRATUM) and hospitals defining the clusters (data element HOSP_KID).	Review HCUP Methods Series Report# 2005-07: Calculating Kids' Inpatient Database (KID) Variances. To learn how to calculate standard errors, view the HCUP Calculating Standard Errors On-line Tutorial on the Tutorial Series page.
⬜	Account for clustering or nesting of observations.	Discharges in the KID are clustered, or nested, within hospitals. Hierarchical linear modeling (HLM) is one way to account for this design aspect of the KID.	For information on using HLM with the KID, review the HCUP Methods Series Report# 2007-01: Hierarchical Modeling Using HCUP Data.
⬜	Account for missing values.	Several techniques are available to assess and reduce the impact of missing data when using the KID.	For general information, review the Missing Values section of the Introduction to the KID on the KID Database Documentation page. For detailed information, review the HCUP Methods Report# 2015-01: Missing Data Methods for the NIS and SID. (The same methods may be applied to the KID.)
⬜	Calculate rates of hospital care events per population when you need to control for differences in the underlying populations.	There are several sources of population data that can be used with the HCUP databases to calculate rates of hospital care events per population to improve comparisons between subgroups (e.g., region of the country).	More information is available under Population Denominator Data for Use with the HCUP Databases (multiple documents; updated annually) on the HCUP Methods Series Reports by Topic page on HCUP-US.
⬜	Estimate incidence or prevalence.	The KID can be used to estimate incidence or prevalence of both common and rare conditions in some, but not all scenarios.	For information on estimating incidence and prevalence, review the HCUP Methods Series Report# 2016-06: Using the HCUP Databases to Study Incidence and Prevalence.
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ICD-9-CM to ICD-10-CM/PCS Transition
⬜	Account for changes in the KID related to ICD-10-CM/PCS.	The transition to ICD-10-CM/PCS has had a direct impact on the reporting of medical services, and these changes affect research using administrative data. The structure of and data elements included in the KID are affected by the transition to ICD-10-CM/PCS.	For more information, refer to the ICD-10-CM/PCS Resources page on HCUP-US that summarizes key issues for researchers using HCUP and other administrative databases that include ICD-9-CM and ICD-10-CM/PCS coding. For additional information about these changes, review the KID Changes Beginning Data Year 2016 document on the KID Database Documentation page on HCUP-US.
⬜	Follow HCUP recommendations for reporting trends with data that include both ICD-9-CM and ICD-10-CM/PCS coding.	Recommendations for reporting trends based on HCUP data that span the October 1, 2015 transition date (before and after the introduction of ICD-10-CM/PCS) have been developed to help researchers design studies.	For more information, review the Recommendations for Reporting Trends Using ICD-9-CM and ICD-10-CM/PCS Data.
⬜	Use current versions of HCUP Tools for ICD-10-CM/PCS-coded data.	ICD-10-CM/PCS coding guidance is continuing to evolve. HCUP software tools for ICD-10-CM/PCS will be updated and should be reapplied throughout the research process. For this reason, it is important to always use the most current version of these tools.	Consult the HCUP Tools & Software page on HCUP-US regularly for the most current versions of the HCUP software tools.
^a HCUP data users acknowledge that violation of the AHRQ confidentiality statute is subject to a civil penalty of up to $14,140 under 42 U.S.C. 299c-3(d), and that deliberately making a false statement about this or any matter within the jurisdiction of any department or agency of the Federal Government violates 18 U.S.C. 1001 and is punishable by a fine, up to five years in prison, or both. Violators of this Agreement may also be subject to penalties under state confidentiality statutes that apply to these data for particular states.
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User Support

Checklist for Working with the KID